Hello all! I realize it has been a while since my last update. Things in Gwenland have been progressing well. She has recently had an eye appointment that gave a positive report on the remnants of the eye tumor. Every scan she has had has been clear.
This Thursday, I had the pleasure of accompanying Gwen on her most recent trip to Boston. It was my first time traveling to see Dr. Shaw and I learned lots of things that I would love to share with you all
just in case you were ever curious about what it is like to be Gwen and in a drug trial in Boston.
Our time together started when she picked me up to head to the airport at 4:30 am. I thought it was sure to be a good day because neither of us overslept.
Apparently, while waiting for boarding, it is a good time to do schoolwork. I personally felt that it was an un-Godly hour for doing work, but said that I was living “a day in the life of Gwen,” so we did school work until we boarded.
Jet Blue is a fairly nice ride. We caught up on our HGTV shows on the flight and got our choice of snacks and drinks. I learned that you can get multiple if you want. Gwen suggested getting juice and then a water for later
but I didn’t listen to her. We also did schoolwork.
Gwen now knows all the ins and outs of getting to the hospital via public transportation. We took the silver line (bus) to the red line (subway) and were in a ton of tunnels and it was rush hour, cold, foggy, and rainy, so it was very crowded. I just followed her like a puppy dog. Our first stop was to a bagel shop down the street from the hospital where we got some delicious breakfast bagels and I purchased a water
because I had not gotten one on the plane.
We then headed to the hospital for Gwen’s bloodwork appointment. Then we sat. And guess what? We did schoolwork.
Sitting and schoolworking
View from the hospital
Dr. Shaw’s appointments were running a bit behind, so I think we were finally seen a little after 11.
Gwen’s scans were clear! Dr. Shaw was super thrilled because of how very clear the scans are. The spots on her bones that have been there since the beginning are showing signs that they are still healing – which is awesome. Gwen has no signs of any side effects to the medication. The medication is hopefully going to be FDA approved some time this summer, which would mean that it would be available locally in the not-so-distant future.
Next, one of the ladies running the drug trial came in and ran an EKG (I think that’s what she was going) on Gwen.
And then we waited until about 1:00 for the medication. There was some kind of hold up in the pharmacy… so we did more schoolwork.
When all was said and done, we ended up with about 45 minutes to “explore” Boston before needing to head back to the airport. I took a bunch of pics to document the fact that A) we did actually leave the hospital that day and B) it turned into spring while we were there.
After speed walking around Boston Commons
where schools like to take field trips and the Public Gardens where they love statues, we headed back to the airport. I was amused by the fact that Gwen was adept enough with the public transportation system to be able to help some other travelers at the airport. Also amusing side note: people smiled at Gwen all day – no matter where we were. Maybe it was her shirt?
We ate a quick bite at a sandwich shop at the airport and hightailed it to our gate only to find out the flight was going to take off a bit late. After a few other little mishaps (and more schoolwork on the plane), we finally got back to Raleigh about an hour late and caught the end of Lachlen’s first baseball game.
I hope you enjoyed this account of Gwen’s whirlwind Boston trips.