Brain News

It’s been a busy week in Gwen Land. She had a spinal tap yesterday and is having some residual lower back pain and headache from that today. I went with her to Duke today so Justin could work (according to the local news, we teachers are absent too much…).

So here’s what we did while we were waiting:

20170217_114439
Grading papers like champs…

Anyway, the first appointment at Duke this morning was literally with a Brain Surgeon. We later met with another specialist for a consultation. Being that we were at Duke, we also met with their respective interns. Between all four of those intelligent people, we heard the same thing over and over, “We don’t know what’s in your brain.” I will fight the urge to make jokes here.

Since I was not present at the appointment on Tuesday, I learned some things today. Such as: in August, Gwen’s brain scan had some spots and no one mentioned anything. Apparently, if any of us got our brains scanned right now, we could have spots show up, too. This week, what alarmed the doctors was that there were about a dozen spots and some were in the same exact location as before AND had shown growth. However, if these were indeed cancerous, the expectation would be that they would react to the contrast in the MRI, and they didn’t.

It was the opinion of all four of the people we saw today that Gwen should wait 4-6 weeks, get scanned again, and then reevaluate. Treatment options for “If these are metastases…”  were discussed (biopsy/radiation, etc). Also, the brain fluids from the spinal tap will be tested for everything under the sun to try to explain the spots. They said that the spots could turn out to be nothing…

Meanwhile, in between appointments today, Gwen received a call from Dr. G’s nurse (Duke-Raleigh) who had been in contact with Dr. Shaw in Boston. (Recall, she is a ROS-1 specialist). Dr. Shaw wants to see Gwen in Boston NEXT WEEK. (See previous note about teachers and “multiple absences” and you will understand that this gave Gwen a bit of a momentary panic attack). 

Gwen was able to talk to Dr. G. tonight on the phone to discuss the Duke appointments as well as the idea of going to Boston. Dr. G. and Dr. Shaw DO NOT want to wait 4-6 weeks. According to Dr. Shaw, spots in the brain that do not react to contrast is something that she sees frequently with the ROS-1 patients (this is actually a question that Gwen tried to ask the doctors at Duke – could this be a different kind of reaction because of her type of cancer. They didn’t think so, but it seems that Dr. Shaw does, and she’s the ROS-1 expert). Dr. G. REALLY wants to get Gwen up there ASAP – she doesn’t want to take chances with Gwen’s brain. Apparently, Dr. Shaw does think that these spots are concerning.

There is a drug that Dr. Shaw can get Gwen hooked up with. Gwen really doesn’t want to leave Xalkori due to the fact that her body hasn’t resisted it yet (it is still working for her lungs), but this other drug has been shown to break through the blood-brain barrier. This course of treatment would also likely mean multiple trips to Boston.

We left the appointments today thinking we had one game plan, and then within a matter of hours, it was thrown out the window!

Gwen knows that, obviously, her health is the most important thing, but we teachers are a warped breed. Sometimes our first thought isn’t “I have to take care of me,” it’s “Oh, how am I going to be absent that much and make all those sub plans and grade all those papers and how will the kids ever be ready for the State Exam??” It is irrational, exhausting, and very, very stressful.

If you are the praying type, please pray for her to find peace with her chosen course of treatment, which ever that may be, and to find peace with putting her health first! And of course pray for her health and the wisdom of her doctors. 🙂

Thanks, everyone!

Advertisements

8 thoughts on “Brain News

  1. I AM THE PRAYING TYPE!!! I have been praying for you, Gwen, and will continue to do so but now even more fervently. God answers prayer! Take care of you first and be at peace.

    Like

  2. I am praying for Gwen and her family! Gwen… You take care of you FIRST! You have plenty of support! I will even grade math papers if needed. Love you Gwen!

    Like

  3. Prayers sent your way. I fully get the teacher concerns but lean on your fellow teachers in this time of need. I wish I was at your school with you. I would help grade or make sub plans.

    Like

  4. When you have been in my thoughts and prayers continually. Please remember honey your health comes first! I am now a retired teacher and understand your feelings but time and events have proven to me you need to take care of your health first . God bless.

    Like

  5. We continue to trust in God to guide all the medical experts in finding the answers and determining the best treatments. Keep being the rock star you are in this battle Gwen. We pray for all your family and we see the hope God is busy providing in each part of the battle. We love you ❤

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s